About Rett syndrome

Rett syndrome is a rare neurological disease of genetic origin. It occurs mainly in girls and less often in boys. Rett syndrome results in multiple developmental disabilities affecting almost every aspect of a child's life. Their lives become completely dependent on help. Finding reliable information is the first step on this difficult path. The information on our website is up-to-date and reliable, taken from official sources, including the websites of the American, European and Russian associations.

What is Rett Syndrome

Rett syndrome is a postnatal neurological disease that occurs in childhood, mainly in girls, rarely in boys. ...


Living with Rett

Life with Rett syndrome is very difficult. But the disease does not exclude the possibility of rejoicing and being happy. ...


Be together

Thanks to the cooperation of parents, doctors, educators, volunteers, philanthropists and the state, it is possible to provide comprehensive support ...


Our mission

Provide an opportunity for people with disabilities to live life fully and with dignity, regardless of which body their soul has chosen.


years improve life of children with Rett syndrome


projects were implemented for children and their families


raised money to help children


children with Rett syndrome in Ukraine

About us - a community of families, friends, doctors, teachers, volunteers of people diagnosed with Rett syndrome. So far we can't cure Rhett's syndrome, but we can improve the quality of life of people with it.


Thank you for being with us and for supporting us!

News and events

Rett syndrome. Communication guide.

The need for communication is a basic human value. Through communication, a person begins to understand not only the feelings ...


«We ourselves must become the changes we want to see in the world.»

— Mahatma Gandhi